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| Cystic Fibrosis Foundation | December 2011 Charlotte Chapter Newsletter |
(Standout Charlotte 2011) (Halloween 2011) (CureFinders 2011)
| While sipping on our hot cocoa this morning, we at the Cystic Fibrosis Foundation office realized it's that time of year again! Time for an update on what we've been up to. As many of you know, our quest for a cure for cystic fibrosis has been racing forward and we have made AMAZING headway. The Charlotte Chapter has thrown some fun and very successful events, on a national level the Cystic Fibrosis Foundation has made the news headlines with the new Vertex drugs, and our volunteers and supporters are getting more excited than ever to be involved! Get ready for a wild ride on the CF Foundation train in 2012, we hope you'll climb aboard! Sincerely, Cystic Fibrosis Foundation, Charlotte Chapter Sabrina, Gretchen, Jolly, Dede & Gwyn Don't forget to "like" our Chapter Facebook Page for up to date information, fun event photos, and much more! Medical Update! 2011 has been a banner year for CF research and care for those living with cystic fibrosis. The CF Foundation and Vertex Pharmaceuticals have been working for a decade to discover and develop potential therapies aimed at repairing the defective CFTR protein that causes CF, and we are seeing amazing results. On October 19, 2011, Vertex Pharmaceuticals, Inc., announced it submitted an application to the U.S. Food and Drug Administration for a potential new CF therapy, VX-770 - under its new proposed trade name, KALYDECO™. If approved, it will be the first drug on the market that targets the underlying cause of cystic fibrosis. Therapies available to people with CF to date only treat symptoms of the disease. The company is seeking approval for the drug in people with cystic fibrosis age 6 and older who carry at least one copy of the G551D mutation of cystic fibrosis. "The CF Foundation is thrilled that KALYDECO is on track for possible FDA approval in 2012," said Robert J. Beall, Ph.D., President and CEO of the CF Foundation. "This is a significant step forward in our collaboration with Vertex and is further validation of the CF Foundation's drug development strategy. We remain committed to accelerating the development of similar targeted medicines that will benefit all people with cystic fibrosis." Read the full New England Journal of Medicine article here. Additional Resources
Fall Wrap Up Brewer's Ball - Sep 17, 2011 The Inaugural Brewer's Ball was held at The Olde Mecklenburg Brewery in mid September and no tastebud left unsatisfied! About 175 guests attended and sampled microbrews from eight local breweries and cuisine from several Charlotte area restaurants. There was even a wine tasting station for those who prefered grapes to hops! The evening was highlighted with fabulous live music, a successful silent auction and Bid for a Cure. The 2nd Annual Brewer's Ball is already in the works. Email Dede Brand for information about joining the committee or partnering as a sponsor or tasting station host. Hope to see you next September as we serve up hope for a cure...one pint at a time! Brewer's Ball 2011 Sponsors & Partners: Accenture, Cisco & Insight, 15 North, Applewood Gallery, Bask, Big Boss Brewing Company, Birdsong Brewing, Cupcrazed Cakery, Four Friends Brewing, Highland Brewing, Kickstand Burgers & Bar, LoneRider Brewery, Midwood Smokehouse, Mortimer's, Napolitano's, NoDa Brewing Company, The Olde Mecklenburg Brewery, Sutton House, The Dandelion Market, The Liberty, Tryon Distributing, VBGB, Whiskey Warehouse Visit the Brewer's Ball Facebook page to see pics and get updates! Rockin' for the Cure - Sep 24, 2011 Thank you to everyone who made the 6th Annual Rockin' for the Cure a guitar smashing success! Guests enjoyed spectacular live and silent auctions and danced the night away to music by Pointless, the Lake's best cover band! At the end of the evening, Rockin' had raised an astounding $65,000 for research and care programs of the Foundation. Event Sponsors: Wells Fargo, PruTech, TekSystems, Signature Consultants, William & Dolores Nizinski, Kforce, Sean Powers, and ddPecker's Wing Shack Plans are underway for the 7th Annual Rockin' for the Cure. If you would like more information or would like to join the committee, please contact Gretchen Rohleder at grohleder@cff.org. Rosebud's Golf Tournament - Sep 29, 2011 The 8th Annual ITS Rosebuds Golf Tournament presented by Odyssey Logistics & Technology hit the links of NorthStone Country Club this fall and shot more than$92,000 into CF research, care and education! Thanks to the tireless efforts of SABIC-IP volunteers and their incredibly generous partners in the logistics community, this tournament continues to provide a wonderful day of golf while making a difference in the lives of CF patients. Thank you to our generous sponsors and hard-working volunteers! We are excited to see all of you again in 2012 to take another swing at making CF stand for "Cure Found"! Outstanding 2011 Rosebuds Sponsors: ITS, Odyssey Logistics & Technology, BDP International, Inc., CH Robinson Worldwide, Kirby Inland Marine, SoCal Transport, Cargo Direct International, DHL Global Forwarding, England Logistics, Katoen Natie, PDI, Command Transport For more information or to participate in 2012, contact Gwyn MacMorris at gmacmorris@cff.org or 704.321.7852. 25th Annual Tennis Pro-Am & Gala - Oct 1, 2011 The 25th Annual Tennis Pro-Am & Gala was a huge success thanks to everyone that participated both in the pro-am tournament that morning at Myers Park CC and the celebration gala that evening at the Quail Hollow Club. That morning 16 amateurs from the Charlotte area enjoyed an exciting pro-am tournament at Myers Park CC with top tennis professionals from across the Charlotte region and southeast. Rick Cheesman won the Flight A tournament, playing against Rich Cho. Laurie Barta won the Flight B tournament, playing against Cameron Weber. It was a great day of tennis for everyone! Guests of the Celebration Gala that evening enjoyed wonderful food, wine, live and silent auctions, and entertainment by The Substitutes at the Quail Hollow Club. The overall event raised a total of $74,000 for the Cystic Fibrosis Foundation! Participating Tennis Professionals: Peter Ayers (OP Racquet Club), Jonathan Barth (Kiawah Island Resort), Thomas Eek (Myers Park CC), Christopher Ehmcke (unaligned), Daniel Habtezgi (Myers Park CC), Ryan Harper (Providence Day School), Scott Jenkin (Palisades CC), Marc Kantor (Raintree CC), Craig Lemley (Myers Park CC), Wade Liles (Firethorne CC), Kevin Ryan (Myers Park CC), Marcus Tell (Barclay Downs Swim and Racquet Club), Eric Winn (Providence CC), and David Yett (Quail Hollow Club). Special Thanks To Our Sponsors: Edifice, United Sleep Medicine, American Airlines, Dr. Matthew Ficca, Navarro Group, and RC Specialties, Plans are underway for the 26th Annual CFF Tennis Pro-Am & Gala. If you would like more information or would like to join the committee, please contact Jolly Johnson at jjohnson@cff.org . Standout Charlotte - Nov 4, 2011 The Foundation hosted its 2nd Annual Standout Charlotte event to recognize 15 outstanding professionals in the Charlotte area. Each honoree has excelled in their industries, the community, and in their commitment to philanthropy. Congratulations again to the 2011 Standout Charlotteans: Fred Baiz, Marjorie Bray, Bill Caldwell, III, Scott Dam, Brad Houck, Kim Hughes, Melissa Lamkin, Sid Levy, Eric Little, Andrew Pacer, Jim Powderly, Jason Snead, Jennifer Vogel, James Wolf, and the 2011 Standout Charlottean of the Year, Johnatan Romero. Together, these Standouts raised more than $50,000 to fund CF research and care. Special thank you to sponsors Snyder's-Lance and TekSystems and to our in-kind donors for making the evening possible: Basil Thai Restaurant, Heineken, Southern Wine & Spirits, Barefoot Wine & Bubbly. Know a Standout Charlottean? Contact Gretchen at the Foundation to nominate them for the 2012 event! E-,mail grohleder@cff.org or call 704-321-7852. CureFinders - Fall 2011 CureFinders is kids helping kids! It is t he CFF's fundraising program for kids, young adults, and schools and is easy to implement in any school or community group! The typical program consists of children and/or young adults competing to raise the most money within their school, whether it is a competition among classrooms, grade levels or groups of students. It can even be a Senior Project! This fall we made a significant push and surpassed our $25,000 goal for the year! In fact, we raised more than $30,000! We would like to give a "shout out" to one school in particular... and that is Charlotte Preparatory School. This was their first year participating with CureFinders and they chose to raise their funds through a 5k Race. Pictured below is the CureFinders team and CF Ambassador, Cale DeJarnett with the race winner, Robbie. How Can I Help? Great volunteers are the keys to the continued success of the CF Foundation. Know any Charlotte singles who would be perfect Bachelors/Bachelorettes in Guys & Dolls? Maybe your company is looking for a team building opportunity like Great Strides, Kick CF or Cycle for Life? Even if you just would like to attend... Give us a shout! | Thank You To Our Sponsors!
2012 Spring Event List Guys & Dolls Bachelor/Bachelorette Auction Feb 25, 2012 Hilton Charlotte Center City The Charlotte Chapter will host its 12th Annual Guys & Dolls Bachelor/Bachelorette Auction on February 25, 2012. A team of dedicated participants is hard at work fundraising and putting together incredible date packages to be auctioned on event night. Guys & Dolls is an incredible event you won't want to miss! Guests enjoy a fast-paced and exciting live auction, the opportunity to bid on exclusive silent auction items, food, drinks, and dancing. Visit www.GuysAndDollsCharlotte.com to meet this year's bachelors and bachelorettes and to get more information on the event Master Chefs Mar 3, 2012 Quail Hollow Club An Evening with the Master Chefs is a night of elegant dining, aromatic wine, and charitable giving. Seven top Executive Chefs, including Chef Sam Talbot of Top Chef fame, and Chef Lou Petrozza of Hell's Kitchenfame, will gather in one kitchen to prepare a seven-course meal presented in spectacular fashion. A special wine pairing compliments each savory course. This event is a sell out every year. For more information and to reserve your spot today, please email or call Sabrina Watt at 704.321.7852. Kick CF With Jordan Gross Apr 28, 2012 Providence High School Kick CF with Jordan Gross-Joes vs. Pros to benefit the Cystic Fibrosis Foundation is the brainchild of Carolina Panther Jordan Gross and his wife, Dana. Jordan and Dana's niece, Brooklyn was diagnosed with cystic fibrosis shortly after birth in 2005. Jordan and Dana wanted to bring cystic fibrosis to the forefront and in turn created this event to raise critical dollars to fund a cure while raising awareness in the Charlotte community and beyond. In just four short years, Kick CF with Jordan Gross has raised more than $250,000! Past participating Panthers include Steve Smith, DeAngelo Williams and Cam Newton! For more information, contact Sabrina Watt or visit The Kick CF with Jordan Gross Web site Click here to see the 2011 Event! Wells Fargo Securities EXTREME HIKE FOR A CURE Apr 27-29, 2012 How far would you go for a cure? In just one day, a dedicated team of Extreme Hikers will trek a 30.1 mile stretch of trail along the Tennessee-North Carolina border to raise funds and awareness for the fight against cystic fibrosis. Now in its 4th year, the Wells Fargo Securities EXTREME HIKE FOR A CURE has become popular throughout the CF community and beyond. The HIKE experience includes a full training and fundraising program, the chance to meet new friends and accomplish new goals while making a difference in the lives of 30,000 people living with CF. Space is limited, so contact Dede Brand today for more information! 30.1 MILES l ONE DAY l A LIFETIME OF HOPE Check out the 2011 HIKE Video Visit the EXTREME HIKE Website May 2012 Western Carolinas Join us for our largest national fundraiser, Great Strides! With nine 5K walks across Western NC and the SC piedmont, anyone can be a part of this amazing event! Walk as an individual or start a team - together we can take strides to cure cystic fibrosis! REGISTER TODAY! May 4, 2012: Franklin, NC May 5, 2012: Brevard, NC Monroe, NC Rock Hill, SC May 6, 2012: Asheville, NC Concord, NC Gastonia, NC May 19, 2012: Charlotte, NC Lake Norman, NC CureFinders Spring 2012 This program is already estimating a big turnout of schools to participate in the spring. In fact, we already have 2 on the calendar! To ensure good results, we are currently focusing on recruiting new schools and ambassadors. We are hoping to beat our year long budget of $30,000! If you think your child's school would like to participate, we would like to hear from you! Email Gwyn at gmacmorris@cff.org On The Radar Take a look at some of the fun events we are adding to the 2012 schedule! Whether you like bikes or hikes, we hope you will join us in our new adventures! This is what you have to look forward to: Cycle For Life - Jul 21, 2012 Calling all cyclists! Join us for the Charlotte region's inaugural CF Cycle For Life� ride on July 21, 2012 in Waxhaw, NC! With two route options, a 35-mile and 65-mile, cyclists will ride along miles of cycle-friendly roads rolling beside undeveloped farmland and beautiful scenic views. This ride is fully supported with well-stocked rest stops, support and gear (SAG) vehicles, medical, food, entertainment, and so much more! This unique event will empower participants to take action and demonstrate their support in the fight against cystic fibrosis in a powerful way. Contact Jolly Johnson at jjohnson@cff.org or 704-321-7852 for more information. EXTREME HIKE FOR A CURE - Fall 2012 An event so nice, we're doing it twice!! Stay tuned for information on EXTREME HIKE FOR A CURE: The Fall Edition. Coming to a trail near you Fall 2012. Contact Dede Brand for information on recruitment and training. |
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